Thanks for all the support
Astrid I can't pinpoint what causes it, it can be bad at home at work or when resting. The most I've come up with is it's really bad when it's hot and humid I really suffer in the summer and last winter when we had -10 I felt fab. Think I need to move to Alaska or Canada anyone got a spare room x

Oh, Louise, I'm so sorry you're going through this worrying puzzle. There's a lot of weird auto-immune stuff that pops up (out of nowhere--and often disappears suddenly as well. Though of course, who knows what's going on...) I am hoping that you quickly find out what it is, which will probably make it easy to find some kind of method of dealing with it. Thinking of you!