Theresa asked how my son's appointment with the Rheumatologist went, and I wanted to start a separate thread for it.
At his last appointment, she was really pleased with his progress and thought that she might be able to take him off the daily anti-inflammatory meds at this time. He has not been doing as well lately, and he clearly still needs them. In fact, she increased the dosage because he is on such a low dose for his weight and having so much pain still. So, instead of stopping the meds he is increasing the amount. There is still no swelling, so that is good. He goes back in two months, and I was able to get his appointment the same day as my daughter's GI appointment- one trip rather than two is always better.
So, not much news.