Update 2 Going Home

My life our life has been a nightmare the past 10 day’s. Unfortunately I couldn’t keep up with this part of YLF. Thank you for praying for us.
Our Go Fund Me Link

https://www.gofundme.com/f/mid.....hare-sheet

On January 14, 2020 after several days of hospitalization, my beautiful daughter Zion Joy was diagnosed with acute flaccid myelitis (AFM).

This is a rare but serious condition. It affects the nervous system, specifically the area of the spinal cord called gray matter, which causes the muscles and reflexes in the body to become weak. Because of these symptoms, some people call AFM a "polio-like" illness. The cause of acute flaccid myelitis (AFM) is unknown.

Anyone can get AFM, but most of the recent cases have been in children.

While I am blessed to to be employed and have medical insurance, I will need to take a 12 week unpaid leave of absence to tend to Zion Joy’s new reality. I’m requesting assistance to meet our living and medical expenses during my leave of absence. Any donation is both welcomed and appreciated.

Update (1)

Every time more and more scary news. My daughter is 1 of 500 in the us diagnosed with AFM. Acute Flaccid Myelitis.
It is so rare hers has been reported to the cdc and they will be visiting us
It horrible. I have more ugly cry on fb live the word needs to spread.
This is the fb live I encourage you to watch and share. Less than 800 world wide.
I will be starting a go fund me so. The world has just shattered again for me and my daughter

https://fbwat.ch/10gWgU7Z1qP14OcH

It has been such a nightmare these past 2 days.

Y’all know Zi’Joy is a runner. Well we em were getting ready to go to the museum of contemporary art kids day on this past Saturday. When all of a sudden she could not stand up. I thought she was playing but she kept collapsing when I let her go and finally she crawled to me on the floor crying my name Donna Donna I hold you.

I rushed her to my sister. To confirm if she was playing or really could not stand or walk or both. Then our life turned into a waking nightmare. We rushed her to our local hospital. For 7
Hrs test were done blood X-ray scans.

Tonight is Monday We are sitting in one of the best children’s hospitals in Chicago. They want to do a spinal tap. But my Zion’Joy fought them tooth and nail on Sunday. She still cannot
Walk or stand but they said she kicked them. lol

My daughter is certainly a warrior it is with a heavy heart that I write this because I have no words only faith that all will be exactly as it needs to be and we will grow through this journey together.

All Zi’Joy says is I want to go to the lake front. The Drs are so surprised at how articulate she is for 2. She is speaking in complete sentences. She told me my body hurts my legs hurt I want to walk and jump but my legs don’t work.

The Drs did not believe me but now all 14 of them and the nursing staff believe me also. I’ve never treated my daughter as anything less than a tiny human with big emotions and I empower and encourage her. We have shared many adventures here. I honor who she as not only as my daughter but as a human and treat her as such.

So after all we have been through and shared with our YLF family I’m asking for prayers and good energy in the universe for my Warrior Princess. Who is fighting even when she cannot stand.

Love you all so much I’ll check in later the week will be long and lonely. Everyone has to work and so it’s just us 2. Her father is just a dummy and chooses not to acknowledge her although I was a big person and called. Any who, I did try he has the info to our hospital. I’ll nerve understand people

But I leave it
In Gods Hands.

As always enjoy the journey.
Donna

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