I am so sorry that you and your husband have to go through that very difficult challenge. I know that you will find the best way to support and help him. Small steps and one day at the time.
Many blessings to you, your husband and family.

Such sad new. Prayers and good wishes for you and your family.

What difficult news! I'm so sorry, Staysfit. I am praying for you and your husband.

My biggest fears. Staysfit how awful and scary. And you are both so young for this to happen. I feel for you.

Hugs! I'm so sorry Staysfit- how awful

I am so very, very sorry to hear about this staysfit. Thinking of you and hoping for the best outcome.

Dear YLF friends, thanks for all your kind and supportive words. I have promised myself that regardless of what is happening, I will continue with my self care routines, exercise, and mindfulness. I have created a personal to do list and at the top is developing a local network of support. My first step is going to be to talk with my employers to alert them that I will need to take time off sporadically and unpredictably in order to attend appointments with DH, or to take care of whatever practical arrangements I need to make in order to help maintain our lives. I am hopeful that they will be flexible and understanding, which has always been the case in the past. I appreciate the thoughts about the availability of treatments and that progression rates vary and can be very slow. I sincerely hope that will be the case for DH.

I am so sorry to hear this, Staysfit. This is devastating news. My thoughts are with you and your husband.

What devastating news to receive. I am so sorry that you and your
husband are going through this, Staysfit. You are in my thoughts and I
hope that the prognosis you get from the specialty center is encouraging.

I am so sorry that you and your husband will have to deal with the effects of this disease. Your husband is so lucky to have you to advocate and care for him. I wish you strength and patience as you seek the latest medical advice and find a way to enjoy some moments of unexpected happiness in the future. You and your family are in my thoughts. Take care.

I’m so, so sorry. Much love to you both.

I am so sorry. I echo all the thoughts and prayers above. In addition I understand the special benefits and burdens of being a physician- family member. Wanting and needing to make use of your expertise and advocacy for your husband’s best medical care, others’ high expectations that you have special powers as a doctor, but also needing to be “ just family “ and be able to rely on your medical experts and caregivers. I think you are very wise to prioritize systems of life and work structure, self-care and family/ community support to provide a base for moving forward.
I appreciate your sharing this heartbreaking news. My thoughts and prayers are with you even through this somewhat odd ( meaning because most of us have not met) modern situation of online community.

I am so sorry to hear this, Staysfit. I am glad the time together at home helped you catch it at an early stage. I hope medicine and luck both conspire to make this as easy as possible for you.

I am very sorry to hear this. My heart goes out to you and your DH. I really hope that you both have access to the health services and emotional support you need. Best of luck.

I am so sorry that you two have received this shocking diagnosis. Your own strengths, which are fully on view here, will serve you so well in the times ahead. You have eloquently written about the loss, the grief, and the desire to live in each moment. Keep writing to yourself and to others. Your family is in my prayers.

Along with the rest, I'm sorry to learn about such a devastating diagnosis--not what we expect for such a young age. You are wise to take it one day at a time for now. With everything else going on today, this is a hard loss to deal with. Please take good care of yourself.

Stay fit, how scary and devastating for you both. I hope you find some good solutions. My heart goes out to you both.

Oh my goodness this is heartbreaking! Sending much love and support to both of you!

You have my most heartfelt condolences. I was so happy to see your post in which you made a commitment to yourself and started to plot a course forward. You are both strong and resilient.

I am sorry to hear this. Warm thoughts and best wishes for you both.

I am so sorry to hear this.He is very young to have developed this problem so it must have been a tremendous shock to both of you.My father has dementia so I really do feel for you and all of your family.

Oh, Staysfit, how incredibly scary for you both. I do hope you secure lots of support to be there as you navigate this dreadful disease. We are here for you, too. You are in my thoughts. xx

Oh, Staysfit, how incredibly scary for you both. I do hope you secure lots of support to be there as you navigate this dreadful disease. We are here for you, too. You are in my thoughts. xx

This is a devastating diagnosis that no one ever wants to hear, but you are wise to start planning now. No one can know how the future will unfold, but you do get to choose how you and your husband will handle the present. Once the shock of my mother’s dementia diagnosis wore off and we all started adjusting, there was still room for much love and laughter as we navigated our new situation.

What an awful diagnosis, especially for someone in his mid-50’s! I’m very impressed with your wise response to this difficult, unexpected situation. You will definitely need support for yourself throughout this journey. I will hope for the best possible outcome for you and your husband.

I am so very sorry this is happening to you both. I don't know anything to say that will help or change anything, just want to add my small support.

I am so sorry. What a scary and stressful challenge! You are very wise to maintain your routine and stay strong. I hope you get the best possible news and treatment. Warm wishes.

I am so sorry to hear this, and so glad that you know to continue to take care of yourself too. Everyone has said everything I would say.

I am so sorry. I know you are devastated.
As a doctor, you may already know of this resource but I'll post the link just in case. While it is a forum provided by alz.org., members discuss all kinds of dementia, share experiences, ask questions & give advice. There are separate sections for caregivers, spouses, patients, early-onset dementia, & info on trials (but anyone is welcome to post anywhere).
I found it invaluable for information & support.

https://www.alzconnected.org/

I am so very sorry to hear about this, Staysfit. You and your husband are in my thoughts.