Rachy ,Angie, & Inge & all of our YLF Family Thank you so much
Zion‘joy was running and jumping just a half an hour before this attack happened. We were getting ready to go to the Museum of contemporary Art as we do on Saturdays or some other place. Zions said I cannot stand up she said mom I want to stand up but I can’t mama I want to move my legs but they not working. Assist a plan baby I stood her up on the bed she collapsed in the bed a sitter up again if she collapsed in the bed I brought to the floor and she collapsed to the floor I said stop playing babyWe went to the floor and I walked back and she collapsed and she started little crawling to me but she wasn’t crawling with her legs she was crying and pulling herself with her arms.
My sister and I live together as most of y’all know share a home to go upstairs to my sister and I said look at this does really look at this. We went through the same test as a be a rush my baby to the hospital right now five minute drive later seven hours later three doctors with her blood test positive nothing came back clean x-rays nothing broken clean cat scan clean. Let’s hold them to a spiral check on my baby because all my Facebook friends said have them check her spam he said when I capable of doing that. We are transported 1030 that night to another hospital.
He Children’s Hospital I didn’t even know the name of the Children’s Hospital had to Google it on a transport the roads were icy and dangerous here in Chicago. We got a room we are checked in and the next day she saw a specialist seven specialist neurologist neurologist Y neurologist nothing to myself. They said we’re gonna do a lumbar puncture I don’t know what that is. They said it’s like a epidural wore a needle goes in your back. Then said they were going to do an MRI Oh my baby the lumbar puncture didn’t go well because she’s two years old and I want to stay still and they gave her a sedative instead of putting her to sleep. So on Monday we had to do it all over again another lumbar puncture an MRI on Tuesday I was told the news so hot my daughter head it is called acute flaccid myelitis oh my baby the lumbar puncture didn’t go well because she’s two years old and want to stay still and they gave her a sedative instead of putting her to sleep. So on Monday we had to do it all over again another lumbar puncture and MRI on Tuesday I was told the news about my daughter head it is called
acute flaccid myelitis AFM
I have no idea no clue and while the doctors were explaining to me and they were all wearing mask and I’m trying to turn on my baby and look at a scan it is mass and my babies fine I couldn’t think I couldn’t breathe all I heard was bullet points. CDC 500 cases in America attacking children common cold polio virus a my mind shut down.
My baby has been in the hospital for 10 days therapist occupational therapist physical therapist 37 doctors 37 doctors neurologist visiting neurologist CBC case studies because I want to google “I couldn’t understand it all and I cried and I poured my heart out on Facebook because that’s my whole why I left is my home to but Facebook is my home where I can make videos and put out pictures it’s a bit easier to connect. But I had to come here and let you know that my baby is sick and I’m loading a nightmare.
It was then that I realize that I needed to pray and ask God the higher power working in my life and in my child’s life things did not go the way I want it to people did not come who I needed to be there put in a missing that God showed up in my face or stronger as a side my bad my baby stay at school to crawl in the intervening days eventually stand up eventually start walking like a toddler trying to learn how to walk her first time. I’m giving all the condensed version because I told a story so much.
God change my nightmare and my daughters nightmare into a testimony a live testimony. My daughter is on heavy medications to include steroids she has swelling in her bag swelling inside of her spine the steroids take the swelling down to help her walk because of her advocacy because of her boys we rested to the emergency room she was able to tell the doctors at two years old how she was feeling where she was feeling pain why she was doing certain things. As at the fight and have a key for my daughter in a hospital that had a lot of issues and a lot of problems they have helped my baby to walk stand stand to scoot and run
There’s a long road t
o physical therapy I have 12 weeks unpaid family medical leave act I have a go fund me not just for that but to help with the mounting bills after insurances physical therapy mental health counseling it’s not a lot but it’s a start and I think you are even if you can’t donate to the go fund me just like my baby name up in prayer her real name is I enjoy Desiree HuntThere’s a long road to physical therapy have 12 weeks unpaid family medical leave act I have a go fund me not just for that but to help with the mounting bills after insurances physical therapy mental health counseling it’s not a lot but it’s a start and I think you are even if you can’t donate to the go fund me just left my baby name up in prayer her real name is I Zion’Joy
I know my story is long but I no longer feel like I’m living in a nightmare I feel like God is calling me to advocate for this epidemic that is spreading and I children from zero newborn to 18 years old they are parents whose children are paralyzed because doctors are ignorant hospital staff are ignorant and cannot diagnose this disease and that is weird why we need to turn ignorance and education.
ThI know my story is long but I no longer feel like I’m living in a nightmare I feel like God is calling me to advocate for this epidemic that is spreading and I children from zero newborn to 18 years old they are parents whose children are paralyzed because doctors were ignorant hospital staff are ignorant and cannot diagnose this disease and that is weird why we need to turn ignorance into education.
My daughter will never be who she was before Saturday, January 10 she is a new thing she is a new creature she is something more than what she was in while she was definitely energetic ball of life and love before she has been through the fire tested and she is a Phoenix that is rising. The last picture is a picture that we took right before the end of summer in 2019 I pray that she will run and walk again but if not she will be the best what ever God has her to be
Thank you my YLF Family
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