https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand Style Advice for Fashion Lovers en-US Mon, 20 Apr 2026 04:48:44 +0000 http://bbpress.org/?v=1.0.2 q https://youlookfab.com/welookfab/search.php https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2094078 Tue, 21 Jan 2020 00:32:27 +0000 Ledonna N. 2094078@https://youlookfab.com/welookfab/ <p>It is so bittersweet leaving here. as I sit here at 6:19 at night waiting for my sister to come pick me up. </p> <p>Our time here has been one of the lowest lows but the greatest highs. </p> <p>I’ll have to write about it in a latter time. Very soon maybe tonight </p> <p>We are entering into our new journey<br /> The 2 people I love most in my life. My Sister &amp; my daughter </p> <p>Link to The Go Fund Me </p> <p><a href="https://www.gofundme.com/f/midlife-mama-medical?utm_source=customer&#038;utm_medium=copy_link-tip&#038;utm_campaign=p_cp+share-sheet" rel="nofollow">https://www.gofundme.com/f/mid.....hare-sheet</a></p> <p>Thank you for all of your support and prayers </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2093874 Mon, 20 Jan 2020 01:41:47 +0000 Marilyn 2093874@https://youlookfab.com/welookfab/ <p><div>You can access Ledonna's Go Fund Me through her Facebook page.</div><div>Ledonna Nubin</p> <p></div> </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2093689 Sun, 19 Jan 2020 05:32:55 +0000 Debbie 2093689@https://youlookfab.com/welookfab/ <p>I just saw this and my heart breaks for you. Is the the go fund me up yet?<br /> I am praying. Does z’Joy need anything pajamas toys anything at all? </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2093478 Sat, 18 Jan 2020 02:16:24 +0000 Karie 2093478@https://youlookfab.com/welookfab/ <p>I am so saddened by this. You and your daughter will be in my prayers and I will put you both on the prayer list at church. </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2093362 Fri, 17 Jan 2020 19:01:55 +0000 Eliza 2093362@https://youlookfab.com/welookfab/ <p>Dear Ledonna- I am so sorry that you and sweet Zi'Joy are going through this. Sending warm healing thoughts to both of you. Know there is much worry and ambiguity; may they be accompanied by caring support, relevant expertise and the required strength. It is hard to go day by day, yet I am betting that your Little Nugget will light the way. YLF is here for you.&nbsp;</p> <p> </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2093301 Fri, 17 Jan 2020 16:13:50 +0000 Gail 2093301@https://youlookfab.com/welookfab/ <p>I just saw this . I am so sorry that this is happening to your little girl. Please know you are in my thoughts and prayers . </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2093283 Fri, 17 Jan 2020 15:34:45 +0000 Angie 2093283@https://youlookfab.com/welookfab/ <p>Sweet <b>Ledonna</b>, my heart breaks for you. I'm sooooo sorry. Little Nugget is not only a warrior, but has YOU as a Mum. The VERY BEST MUM. That is her biggest blessing of all. Keep on fighting. We are here for you in any way that comforts and supports you. Much love and healing thoughts. xo </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2093278 Fri, 17 Jan 2020 15:10:50 +0000 Anonymous 2093278@https://youlookfab.com/welookfab/ <p>God bless you and keep you. &nbsp;I know you already have the courage to deal with this, but you know we are here if you need us. &nbsp;Just let us know. &nbsp;Much love to you both. </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2093240 Fri, 17 Jan 2020 13:03:52 +0000 RobinF 2093240@https://youlookfab.com/welookfab/ <p>Oh Ledonna, just saw your update! So sorry to hear about this diagnosis. She is lucky to have you for her mom though, because I know you will be a wonderful support and advocate for her. Please keep us posted! </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2093218 Fri, 17 Jan 2020 09:34:00 +0000 rachylou 2093218@https://youlookfab.com/welookfab/ <p>Ok! </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/4#post-2093212 Fri, 17 Jan 2020 07:08:02 +0000 Ledonna N. 2093212@https://youlookfab.com/welookfab/ <p>Rachy friend ne on fb Ledonna Nubin </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2093206 Fri, 17 Jan 2020 05:50:22 +0000 rachylou 2093206@https://youlookfab.com/welookfab/ <p>Ledonna, I admire your integrity so much. Period. </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2093204 Fri, 17 Jan 2020 05:18:52 +0000 Ledonna N. 2093204@https://youlookfab.com/welookfab/ <p>I did not want to anger or step on anyone’s toes. So what I did iMessage Angie because I know the group is very wonderful and I’ve been with you all for years but I did not want to make any solicitation like a go fund me as in It might go against group rules: I love and respect this group so much. So I did message Angie. I’m waiting for a response and if, which I think is OK and if it is not approved then I can share my go fund me page privately maybe </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2093188 Fri, 17 Jan 2020 02:48:31 +0000 Windchime 2093188@https://youlookfab.com/welookfab/ <p>Oh, LeDonna, what a shock and how awful! &nbsp;I’m so glad they are letting you share a bed with your Warrior Princess. &nbsp;I hope you have family and/or friends there to support you. &nbsp;Sending thoughts for an extremely positive outcome. </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2093122 Thu, 16 Jan 2020 19:45:51 +0000 Anonymous 2093122@https://youlookfab.com/welookfab/ <p>How awful and terrifying! We got your back! Also check with your employer about taking FMLA to have the time off you need! </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2093103 Thu, 16 Jan 2020 18:22:11 +0000 Barbara Diane 2093103@https://youlookfab.com/welookfab/ <p>Sending more love and hugs and prayers. Please let us know when the Go Fund Me is up. </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2093032 Thu, 16 Jan 2020 12:23:20 +0000 marianna 2093032@https://youlookfab.com/welookfab/ <p>LeDonna, I follow your journey on Facebook as well and I am just shattered by this news. I also have a 2 year old daughter and your pain radiates through my bones and I just cannot imagine the immense pain you and your baby going through. I just feel so hopeless and wish there was something I could do. I’m sending lots of virtual hugs to you and Z’Joy. I am in Chicagoland and would love to send your baby a new toy or something to brighten her spirits. </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2093018 Thu, 16 Jan 2020 08:41:02 +0000 Kate 2093018@https://youlookfab.com/welookfab/ <p>Sending you love and continued prayers, Ledonna. You and Nugget are in my heart. Congratulations on your great nephew! </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092986 Thu, 16 Jan 2020 03:11:05 +0000 Jaime 2092986@https://youlookfab.com/welookfab/ <p>Just a reminder that you and ZJ are in my heart, and I am so glad you are able to co-sleep with her. I am sure that is helping her enormously. And congratulations on your great-nephew! (Little known fact: I am great-aunt to 17!)&nbsp;</p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092950 Wed, 15 Jan 2020 23:09:07 +0000 Suz 2092950@https://youlookfab.com/welookfab/ <p>Donna, my heart breaks for you. Thank you for sharing and please continue as you can.&nbsp; </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092861 Wed, 15 Jan 2020 17:34:21 +0000 Jenn 2092861@https://youlookfab.com/welookfab/ <p>Oh Ledonna, I'm so sorry. I hope they start to have a clearer picture of prognosis as they start treatment and physical therapy. I was living in Colorado when the outbreak of this started there in 2014, and it was so scary. No one knew what was happening. I wish I was close enough to just come sit with you. I'd be there in a flash. </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092848 Wed, 15 Jan 2020 16:43:40 +0000 Diana 2092848@https://youlookfab.com/welookfab/ <p>Ledonna, I'm so sorry to hear about the diagnosis, but I have every hope that she'll fight off the virus and recover. &nbsp;Your daughter is a fighter after all. &nbsp;And she is SO LUCKY to have you as a mom; I know that you will be a tireless and amazing advocate, not just for her but for all the children that have this. &nbsp;</p> <p>Much love to you both. &nbsp;&lt;3 </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092841 Wed, 15 Jan 2020 16:04:49 +0000 nemosmom 2092841@https://youlookfab.com/welookfab/ <p>Oh, sweet Donna, I wish I could hug you in person. </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092826 Wed, 15 Jan 2020 15:06:43 +0000 Janet 2092826@https://youlookfab.com/welookfab/ <p>NIH has invested in studies of AFM, primarily based in University of Alabama at Birmingham, and I think there is some involvement with Johns Hopkins in Baltimore. Check out this link and send emails to the doctors listed, ask them who to talk to. Keep building on that network, and connect with other parents with children diagnosed with AFM.&nbsp;</p> <p><a rel="nofollow" href="https://www.nih.gov/news-events/news-releases/nih-awards-contract-acute-flaccid-myelitis-natural-history-study">https://www.nih.gov/news-event.....atural-his</a></p> <p>Also, it does seem that a number of children diagnosed have been treated successfully with residual weakness:<br /><a rel="nofollow" href="https://jamanetwork.com/journals/jama/article-abstract/2735515">https://jamanetwork.com/journa.....ct/2735515</a></p> <p>It appears there is a Facebook group for parents of children with this diagnosis:<br /><a rel="nofollow" href="https://www.webmd.com/children/news/20181120/families-push-officials-to-tackle-mystery-of-afm"></a><a rel="nofollow" href="https://www.facebook.com/groups/601223099978283/">https://www.facebook.com/groups/601223099978283/</a> </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092820 Wed, 15 Jan 2020 14:43:26 +0000 SW Ann 2092820@https://youlookfab.com/welookfab/ <p>Dear LeDonna and ZiJoy....praying for healing and strength for both of you....praying for knowledge and hope for the medical community to help you deal with this.&nbsp; You are a great mother, and you and ZiJoy will overcome this diagnosis.&nbsp; Hugs to you both..... </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092819 Wed, 15 Jan 2020 14:41:45 +0000 Janet 2092819@https://youlookfab.com/welookfab/ <p>LeDonna, I am so sorry about this diagnosis. I'm sending you all the best wishes for answers and successful treatment. </p> <p>It may be a stretch, but I've asked two of my medical professional BFFs (one works in pharmaceutical research and development, the other a surgeon) if they have heard of any research or treatments. I have friends at NIH as well, and will ask them too.&nbsp;</p> <p>In the meantime, yes, please set up a Go Fund Me so that you can get the support you need as you spend the necessary time being there for your sweet girl. I will contribute, no question.&nbsp; </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092814 Wed, 15 Jan 2020 14:10:50 +0000 AJ 2092814@https://youlookfab.com/welookfab/ <p>Yay for a snuggle bed!! </p> <p>Praying for a smooth delivery for your niece. </p> <p>I just heard this encouragement on my radio station:<br /> If God puts a Goliath in front of you, He must believe there is a David in you. </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092813 Wed, 15 Jan 2020 14:10:49 +0000 Chris987 2092813@https://youlookfab.com/welookfab/ <p>Wow how incredibly awful, I don’t have many words. You are both in my prayers, </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092800 Wed, 15 Jan 2020 13:46:08 +0000 Stagiaire Fash 2092800@https://youlookfab.com/welookfab/ <p> <div>You are such a good mom, encouraging and teaching your bright, strong, happy child in all the right ways, and then this comes along--what a blow! You can withstand it, and so can she. I did a tiny bit of reading up on AFM; the articles I saw all talked about recovery, which can take a year, but does eventually happen, thank goodness. Your fighter who loves to run will be back up on her feet and stronger than ever after this. <br /></div><div><br /></div><div>Congrats on being a great-auntie!<br /></div><div><br /></div><div>On co-sleeping: my son and I did before and for years after he was your daughter's age. We both slept better because of it. <br /></div><div><br /></div><div>Thank you for updating us when you can, in words or pix (love the shot of her sitting up to eat) and please do share the GFM details. <br /></div> </p> https://youlookfab.com/welookfab/topic/my-little-warrior-runner-can-no-longer-stand/page/3#post-2092794 Wed, 15 Jan 2020 13:37:18 +0000 Inge 2092794@https://youlookfab.com/welookfab/ <p>Oh LeDonna, you sure are being dealt a very rough deal. You are both warriors through and through and you will get through this, and please know we will always be here to support you. I'm so glad you could nestle together again!! Your lovely pictures are bringing tears to my eyes. Warm hugs and please keep us posted. </p>