YouLookFab Forum » Topic: Gutted

YouLookFab Forum » Topic: Gutted https://youlookfab.com/welookfab/topic/gutted Style Advice for Fashion Lovers en-US Sun, 19 Apr 2026 02:49:02 +0000 http://bbpress.org/?v=1.0.2 <![CDATA[Search]]> q https://youlookfab.com/welookfab/search.php Kate on "Gutted" https://youlookfab.com/welookfab/topic/gutted/page/2#post-2225038 Sat, 18 Sep 2021 17:55:56 +0000 Kate 2225038@https://youlookfab.com/welookfab/ I’m so sorry to hear this, Ms. Maven. I have no experience with MS, but you have gotten some excellent advice here. I too am a fan of exploring functional medicine. Sending you love & support. Debbie on "Gutted" https://youlookfab.com/welookfab/topic/gutted/page/2#post-2224995 Sat, 18 Sep 2021 16:01:45 +0000 Debbie 2224995@https://youlookfab.com/welookfab/ I am do sorry and will keep all of you in My prayers. Anonymous on "Gutted" https://youlookfab.com/welookfab/topic/gutted/page/2#post-2224918 Sat, 18 Sep 2021 11:05:51 +0000 Anonymous 2224918@https://youlookfab.com/welookfab/ I'm so sorry- hugs to both of you! Looks like you have some good resources here! Janet on "Gutted" https://youlookfab.com/welookfab/topic/gutted/page/2#post-2224701 Fri, 17 Sep 2021 15:01:02 +0000 Janet 2224701@https://youlookfab.com/welookfab/ I'm sorry to hear of this, but echo the encouraging words of others. I have a friend who was diagnosed with MS about 15 years ago. You would not know it to spend any amount of time with him at all. He is careful with what he eats and works to manage stress and diet, etc. He is a year younger than I am (55) and doing great. I hope your nephew finds it can be managed as well!  Gail on "Gutted" https://youlookfab.com/welookfab/topic/gutted/page/2#post-2224596 Fri, 17 Sep 2021 10:12:55 +0000 Gail 2224596@https://youlookfab.com/welookfab/ Sorry to hear this news. It's such a shock.  I have a good  friend that has ms. She has had it for 28 years and you wouldn't know that she has it . She takes an older drug and has been able to remain stable. Fingers crossed that your nephew can do the same . I am also a fan of exploring functional medicine . Cardiff girl on "Gutted" https://youlookfab.com/welookfab/topic/gutted/page/2#post-2224438 Thu, 16 Sep 2021 17:25:05 +0000 Cardiff girl 2224438@https://youlookfab.com/welookfab/ Scotland has the highest number l believe and there was some research out this week suggesting that there maybe a connection with Epstein Barr infection in adolescence and early adulthood.l am sorry l can’t remember where l saw this or l would add the link but if l come across it again l will. citygirldc on "Gutted" https://youlookfab.com/welookfab/topic/gutted/page/2#post-2224313 Thu, 16 Sep 2021 13:07:02 +0000 citygirldc 2224313@https://youlookfab.com/welookfab/ I'm so sorry to hear this. My thoughts are with you and your nephew. Sloper on "Gutted" https://youlookfab.com/welookfab/topic/gutted/page/2#post-2224245 Thu, 16 Sep 2021 01:07:18 +0000 Sloper 2224245@https://youlookfab.com/welookfab/ I'm glad the info was helpful. What's the quote - the longest journey begins with the first step. It can be a firehose of information and emotion in the first weeks after a major diagnosis.  Big hugs!! Bijou on "Gutted" https://youlookfab.com/welookfab/topic/gutted/page/2#post-2224234 Thu, 16 Sep 2021 00:15:16 +0000 Bijou 2224234@https://youlookfab.com/welookfab/ Sorry to hear this news. I love Peri’s advice that it is treatable and the resources that Gryffin has provided. Stagiaire Fash on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2224229 Wed, 15 Sep 2021 23:18:29 +0000 Stagiaire Fash 2224229@https://youlookfab.com/welookfab/ With 23andme, the quizzes are endless, I tell you. My son and I did it just before moving here, found out he carries the trait for sickle cell and I have a high portion of Neanderthal, and they still send me quizzes, etc. MsMaven on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2224193 Wed, 15 Sep 2021 21:35:08 +0000 MsMaven 2224193@https://youlookfab.com/welookfab/ Thank you all for your support--it means a lot to me. My sister forwarded Sloper's link to her son and his wife and they send back their appreciation. She tells me that after talking with his doctor today, he understands that this is going to be a long process and said it's scary right now to start and know for sure what's ahead.  I'm always interested in genetic links and am curious to find out if the illness my sister and Mom have struggled with could somehow be related. My superficial search so far turns up nothing, but I did see something about some area that had a higher number of cases in an area. Now can't remember if it was Wales or somewhere in the UK. I recently did DNA testing with 23andMe and Ancestry, so I'll go back there as well to see if I can find anything. I still haven't finished all the quizzes they have.  Cardiff girl on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2224159 Wed, 15 Sep 2021 19:53:36 +0000 Cardiff girl 2224159@https://youlookfab.com/welookfab/ I am adding  my sorrow for you at hearing this news.As far as l understand it the progression of MS is very variable from patient to patient.The shock of the diagnosis , the unpredictable nature of the disease and the youth of your relative naturally make this hard news  to come to terms with.l am wishing you and your family all the very best as you navigate this difficult journey together. slim cat on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2224111 Wed, 15 Sep 2021 17:09:20 +0000 slim cat 2224111@https://youlookfab.com/welookfab/ So sorry to hear this - such trying times. Hope family support and medical help will ease some pain. MsMary on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2224096 Wed, 15 Sep 2021 16:33:27 +0000 MsMary 2224096@https://youlookfab.com/welookfab/ Oh, I'm so sorry to hear this! Sending love and support to you and your family! Anonymous on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2224083 Wed, 15 Sep 2021 15:58:40 +0000 Anonymous 2224083@https://youlookfab.com/welookfab/ No experience with MS but I have experienced for myself and others  something mildly worrisome turning out to be something horrifying. A doctor recommended not looking too far ahead, only on the next two or three steps and not letting the problem completely dominate all of life. I bought a book for my grandchild called The Rabbit Listened, as useful to myself as her, about how sometimes just being attentive to someone else, without trying to fix their problem or diminish it or push them in any direction can allow them the space to explore their own feelings and the clarity to find their own way. Helena on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2224068 Wed, 15 Sep 2021 14:38:28 +0000 Helena 2224068@https://youlookfab.com/welookfab/ I am so sorry to hear this. Canada has a really high relative rate of MS - we have one friend who received this diagnosis, and it's an ongoing process of adaptation, even years later. However, I know she has also found lots of resources and support groups, etc. and I hope your nephew will find similar support.  I think your kindness and lending an ear and a shoulder will be a tremendous support to your sister and nephew - even if it needs to be from a physical distance for now. Sending huge love.  RobinF on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2224064 Wed, 15 Sep 2021 14:00:15 +0000 RobinF 2224064@https://youlookfab.com/welookfab/ So sorry for what your family is going through. I have no experience with MS but will keep you in my thoughts. Staysfit on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2224063 Wed, 15 Sep 2021 13:58:41 +0000 Staysfit 2224063@https://youlookfab.com/welookfab/ So very sorry to hear this news!  I have a classmate from medical school with MS.  He was diagnosed in his early to mid 20’s. He already had the diagnosis when we were in medical school. He continues to have fairly good neurological function more than 30 years later.  He is married, a parent, and still works as a physician.  I recall he decided to slow the pace of his residency training to reduce stress…and because of an exacerbation of his illness at that time.  <div> </div><div><div> </div><div> </div></div> viva on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2224028 Wed, 15 Sep 2021 11:29:04 +0000 viva 2224028@https://youlookfab.com/welookfab/ I'm so sorry. I have a friend with MS but no real personal experience to speak of. But I will keep you and your family in my heart as you navigate this. Jenni NZ on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223932 Wed, 15 Sep 2021 01:24:53 +0000 Jenni NZ 2223932@https://youlookfab.com/welookfab/ I’m so sorry. I also have Gryffin’s profession but no special training regarding MS. I have had several patients over the years, and acquaintances, and the severity seems so variable, that you can’t seem to predict anything. It may not be as bad as you fear. But very unfair I agree. Angie on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223877 Tue, 14 Sep 2021 21:52:18 +0000 Angie 2223877@https://youlookfab.com/welookfab/ MsMaven, that is very tough news to hear, and I'm so sorry. Wishing your family strength and a way forward. I'm sure you will be of great support to your sister.  gryffin on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223851 Tue, 14 Sep 2021 20:35:02 +0000 gryffin 2223851@https://youlookfab.com/welookfab/ Hi Ms. Maven - I'm a physician and this is not my specialty.  But I've had a strong interest in the causality of disease and I have been scope locked on researching and making diet and lifestyle changes especially since the advent of covid to try and minimize my risks.  A number of physicians have youtubes and books out inre to how lifestyle, STRESS, diet, sleep, exercise impact health.  Medicine in our time is reductive.  We treat a symptom or constellation of symptoms but often don't know the cause or fail to look at areas of our body that are causing and fanning the flames of disease.  I'm a huge fan of Joel Fuhrman's Eat to Live.  I have personally reversed an autoimmune inflammatory arthritis with dietary excellence and going gluten free.  Dr Terry Wahl has a number of videos on how she reversed her MS.  Mark Hyman, MD functional medicine has a lot of related videos on his Dr Farmacy Channel on youtube.  Cynthia Li, MD has her book out on reversing her autoimmune disease. 20 years ago I would have blown this all off as woo-woo.  So take this from where it comes.  If you have MS you have a boatload of brain inflammation aka leaky brain.  The data absolutely shows that you will also probably have an astounding amount of leaky gut.  2/3 of our immune system lives in the gut.  I strongly believe the data that there are six pillars of health - diet, exercise, sleep, stress management, removal of toxins, appropriate supplementation.  I've spent the last 24 month researching this and I drank the coolaid.  I'm a physician, I practice medicine as I was taught, but I incorporate much of nutritional medicine into my practice and my life.  I absolutely would suggest your nephew go through the traditional channels.  But we were not trained to look at the body as an ecosystem.  I strongly urge you to also recommend your nephew also have a functional medicine consult (again not my area) or truly educate himself in this area.  The body has an extraordinary ability to heal but it can't unless you remove the causes of inflammation that are the root cause of the symptom and disease.  If you'd like any further info don't hesitate to pm me. nuancedream on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223845 Tue, 14 Sep 2021 20:14:46 +0000 nuancedream 2223845@https://youlookfab.com/welookfab/ MsMaven, such devastating news regarding your nephew, a frontline healthcare hero. My cousin, a teacher, swim coach and former aquatics coordinator for the Michigan Special Olympics, was diagnosed at age 50 with MS. As others have noted, the course of MS is very unpredictable but there are some very promising treatments currently out there. Wishing you and your family strength and comfort. MsMaven on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223841 Tue, 14 Sep 2021 20:09:24 +0000 MsMaven 2223841@https://youlookfab.com/welookfab/ Talked with Sis today. She's in much better shape today and needed to talk. Sloper, I sent her the link to the MS Society website. She said the whole family had been looking up stuff online.  Sal on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223824 Tue, 14 Sep 2021 19:33:27 +0000 Sal 2223824@https://youlookfab.com/welookfab/ Oh this is very hard. I do have people in my family with MS and also used to work for the MS Society. It is a very unpredictable disease and there are different types from relatively mild through to more severe. There are wonderful treatments. I think Peri wrote some excellent advice above re how to communicate. A big virtual hug. MsMaven on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223794 Tue, 14 Sep 2021 18:16:33 +0000 MsMaven 2223794@https://youlookfab.com/welookfab/ Thank you all for your comforting and wise comments. I haven't known anyone with MS except for the wife of DH's coworker and this was decades ago. Your experiences help me understand a little better what we will be dealing with.  Joy, I don't know yet what kind of tests he had, but I know he will get the best treatment.  Nikki, thanks for the information you shared. I wonder if this is a possibility for my nephew. He was the first one of the family to get vaccinated and he had a strong reaction to it.  Sloper, great website--I'm going to spend some time reading it today. After I read some of the early symptoms it could well be that one of them, problems with balance, could have caused the bike accident and symptoms and not the other way.  I haven't talked to my sister yet. It will probably be later if she's up for it. If not, I'll wait until she is. At the beginning of the pandemic she was diagnosed with a difficult and painful disease that our Mom also suffered with for several years, which as made life doubly difficult for her. There is so much to learn and I wonder if these diseases have a genetic component or if they are related.  Again, thank you all. This is a safe place to come to. Eventually the MDs will share on FB as they have done with Covid information, but right now I don't want to mention it there or on Twitter or anywhere else but here.  And I am so grateful for my own good health. Sloper on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223781 Tue, 14 Sep 2021 17:21:49 +0000 Sloper 2223781@https://youlookfab.com/welookfab/ I'm sorry that your nephew - one of our true heroes - is facing this challenge.  And that you can't be at your sister's side at this time. I guess I'm a professional patient too (like Rachylou calls it) - not MS. Plenty of challenging moments to be sure, but it never fails to uplift me to read about the many, many scientists and researchers all over the world who have worked over the decades, and who continue to work to bring humanity new treatments for many diseases. What I think would be comforting to your sister is for you to become as informed as you can - so that you can listen with awareness, and offer information if you feel the moment is appropriate (and is asked for). There's positive news in the development pipeline: <a rel="nofollow" href="https://www.nationalmssociety.org/Research/Research-News-Progress">https://www.nationalmssociety......s-Progress</a> Looks like some other good resources on this site too. Also - very important - as Peri says - each case is different (an important lesson I learned from my own situation).  Her other advice is also spot-on.   Peri on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223768 Tue, 14 Sep 2021 15:59:43 +0000 Peri 2223768@https://youlookfab.com/welookfab/ I'm so sorry this has happened. Life isn't fair at all. No, he should not have to have this. My BFF's SIL has had it for 30+ years. I think she has some issues but is not disabled and from what I know, functions okay in her life. My hairdresser's husband has had it for about 5 years and he is still working in a job that is fairly physical. I think every case is different.  The only thing I would say is to keep the treatment options you've read about to yourself for now. New diagnoses can be so overwhelming and the last thing most people can handle is to be flooded with things people read about online. I wouldn't even ask for many details unless she offers them. With your nephew and his wife both being MDs I'm sure they are primed and able to get the best information available as soon as they are ready for it. The best thing you can do for your sister is to say "it's treatable". That's what my husband's oncologist said at his diagnosis of Lymphoma and those two words helped more than anything. At the time it was all I could hold on to. And then listen to anything she wants to say. You referred to a loss so I'm sure you already know what I'm talking about.  Hugs.  Anonymous on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223765 Tue, 14 Sep 2021 15:20:38 +0000 Anonymous 2223765@https://youlookfab.com/welookfab/ Very sorry, Ms. Maven. I’m sure a thorough diagnosis process was completed. But I want to share that I know someone with Guillian-Barr syndrome caused by COVID. And Guillian-Barr is very similar to MS. I wish you and your family strength and comfort. Anonymous on "Gutted" https://youlookfab.com/welookfab/topic/gutted#post-2223754 Tue, 14 Sep 2021 14:31:57 +0000 Anonymous 2223754@https://youlookfab.com/welookfab/ I'm so sorry - it's a tough diagnosis to receive. My grandmother and my husband's sister both had/have MS  , with SIL having a very advanced and debilitating case . Manitoba has among the highest rates of MS in the world - unfortunately.