Now that I see thunalata's recommended site, it looks very familiar - especially the forum... I really like that approach, since you can look and see what has *actually* helped people. Kind of like this forum, it is not all theory but real-life experience.

Thanks for all great advice, ladies. Yesterday DH and I had a sort of discussion slash argument about this situation and he agreed on a sort of compromise-I won't come to activities that are normally outdoors but will consider coming to some of the others. I also suggested that we take walks on the beach which he was ok with and try to see other couples socially. Unfortunately, all the couples we know have small kids(and we don't) and that makes it more difficult to get together but at least he said he is willing to try that.

I also think that huge part of the problem is him not accepting my illness(and my not able to do a lot of same things anymore) which is what I told him as well. This is one part that I think will remain a problem because despite the fact that I tried talking to him numerous timese about it before, tried to explain why I have the symptoms, etc, he acts as if this is the first time he is hearing this(instead of the 10th time). He actually asked me"are you really sick?".I feel like beating my head agaist the wall regarding this because he is in complete denial and I really do not know how to get through to him.
I remember that Rae suggested that I take him to the doctor's app-I haven't actually been at the Western doctor regarding this for a while because there is no cure and no set threatment so anything doctor offered me before didn't help and it was like stumbling around in the dark. I turned to alternative threatment while back and it does bring some relief(but my husband doesn't believe in Eastern medicine either so to him it all hog wash).
If anyone has experienced this with a spouse or family member, I would love to hear your advice

Victoria, you have found the heart of the problem. He doesn't believe you're sick. It's ridiculous he won't take your word for it - if you had a fever, were coughing, bleeding, etc, it would be so easy to prove but fatigue is hard for the external observer to measure.

You must have an annual exam with a western doctor, right? Schedule one now and bring him. Let him hear from an "authority figure" exactly what your health constraints are.

Is there a support group out there for your particular condition? Perhaps those people would have better advice on how to explain it to someone who just doesn't get it.

I have to admit that I have been on the other side of the scenario where I didn't quite understand someone's health-based requirements, because I've (knock on wood) been lucky enough to enjoy robust health/strength and don't have a relevant experience to draw on. Even if someone says "I have this issue", I don't know that it means "x and y and z". While most people would make the mental leap to "x and y and z" on their own, I wouldn't be capable of doing so. Once the person explicitly explains "x and y and z" to me, and doesn't expect me to make the mental leap, then I know how to behave appropriately. It sounds like you have already done a good job of explaining everything in detail to your husband, but maybe he just hasn't heard the one thing that would make it click for him.